Needs of full participation in intestinal management for primary caregivers of patients with neurogenic bowel dys-function after spinal cord injury:a qualitative study
REN Liangxiang
MEI Peipei
MAO Erli
TANG Yifan
WANG Xue
YE Yiqing
Abstract：Objective To investigate the needs of the main caregivers of patients with spinal cord injury following neurogenic bowel dysfunction to participate in the whole process of intestinal management.
Methods Nine main caregivers of patients with spinal cord injury in Jiangsu Province Hospital from January to Decem-ber,2024 were selected with objective sampling method.They were investigated face-to-face semi-structured in-depth interviews,and the data were analyzed,summarized and extracted by Colaizzi 7-step analysis method.
Results Three themes and eight sub-themes were extracted:the needs of professional knowledge and skills standards in intestinal management(lack of intestinal training knowledge,lack of ability to acquire knowledge and different standards of medical institutions);the needs of physical ability and decision making ability participating in intesti-nal training(lack of participation,single decision-making behavior,excessive dependence on medical personnel);the desire for therapeutic benefits and the needs for building psychological confidence(concerns about the pa-tient's prognosis,overdependence on medication).
Conclusion Clinical medical staff should pay attention to the actual needs and difficulties faced by the main caregivers of patients with neurogenic bowel dysfunction to participate in the entire intestinal management,and construct targeted training programs,strengthen the skills and knowledge training,to enhance their autonomy and responsi-bility,to achieve the rehabilitation goal better.
Keywords：spinal cord injuryneurogenic bowel dysfunctionprimary caregiverwhole intestinal managementnursequalitative study
Publication Date：2025-08-25
Online Publishing Date：2025-09-05(First online date of this platform, not the publication date of the document)
Pages：7( 965-971 )