Chinese expert consensus on disclosure of sudden unexpected death in epilepsy
Comorbidity Committee of China Association Against Epilepsy
LIU Yong-hong
LI Jin-mei
WANG Qun
Abstract：Sudden unexpected death in epilepsy(SUDEP)refers to the sudden,unexpected,and witnessed or unwitnessed death of a patient with epilepsy,with or without evidence of a seizure,excluding status epilepticus,non-traumatic and non-drowning causes,and where autopsy reveals no structural or toxicological cause of death.Identifying high-risk populations and implementing appropriate interventions are crucial for SUDEP prevention.However,there is currently no consensus on how to select suitable recipients,content,responsible parties,and methods for disclosure.The Comorbidity Committee of China Association Against Epilepsy(CAAE)formed a working group to develop this consensus,employing the Delphi method to finalize 7 recommendations.The consensus addresses the recipients,content,responsible parties,and methods of SUDEP disclosure,with a focus on determining appropriate disclosure targets to avoid excessive anxiety caused by over-disclosure.
Keywords：Sudden unexpected death in epilepsyInformed consentRisk factorsChina
Publication Date：2025-11-25
Online Publishing Date：2025-12-16(First online date of this platform, not the publication date of the document)
Pages：6( 986-991 )