Requirements of patients with bladder cancer for rehabilitative information

doi:10.3321/j.issn:1673-8225.2004.23.007

Abstract：BACKGROUND: Patients with bladder cancer experience more suffering because its high recurrence; however, there is no research on the needs of patients with bladder cancer.OBJECTIVE: To identify the detailed information of various needs of the patients with bladder cancer.DESIGN: A cross-sectional investigation based on diagnosis was conducted.SETTING and PARTICIPANTS: From July to December 2002, the experiment was completed in the Department of Urology, No. 1 Hospital of China Medical University. Subjects were the hospitalized patients who had been diagnosed as having bladder cancer.METHODS: Eighty-two bladder cancer patients were assessed and the Supportive Care Needs Survey(SCNS) was used as assessment tool. Seventy-four patients completed questionnaires(90. 2% ).MAIN OUTCOME MEASURES: Psychological domain, domain of health system and information and domain of patient care as well as support domain.RESULTS: Bladder cancer patients needed help mostly in the domain of health system and information, and the next were the patient care and support and psychological domains. Patients' age and family income were related to the psychological domain. Education and family income were related to the domain of health system and information. Gender and family income were related to the domain of patient care and support domain.CONCLUSION: Bladder cancer patients' needs are not met in many domains of rehabilitative information. The results provide important information for improving the quality of life of bladder cancer patients.