Study on status quo and influencing factors of self-perceived burden of amyotrophic lateral sclerosis patients
Abstract：Objective:To investigate the status quo of self-perceived burden of patients with amyotrophic lateral sclerosis and analyze the influential factors.Method:A total of 144 patients with amyotrophic lateral sclerosis and their caregivers were investigated by a general data questionnaire,a modified amyotrophic lateral sclerosis scale,a self-perceived burden scale,and a Zarit Caregiver Burden Scale.Result:Amyotrophic lateral sclerosis patient self-perceived burden was(24.51±11.22) points,at a mild level;multivariate stepwise regression analysis showed that the main factors affecting the self-perceived burden of amyotrophic lateral sclerosis patients were gender respiratory dysfunction,understanding of the disease and caregiver burden (P＜0.05).Conclusions:Self-perceived burden was common in patients with amyotrophic lateral sclerosis,and caregivers should value the assessment of patients' self-perceived burden and explore better treatments and care programme to reduce the patient's self-perceived burden.
Keywords：amyotrophic lateral sclerosisself-perceived burdencaregiverinfluencing factorsrespiratory dysfunction
Publication Date：2018-01-01
Online Publishing Date：2025-08-15(First online date of this platform, not the publication date of the document)
Pages：5( 242-246 )